He's so incredibly happy to be home. He is still recieving 2 puffs every 4 hours and struggling greatly with that, and his oxygen numbers are again in the high 70s. I'm unsure what this means, but will be calling cardiology this morning to talk to our wonderful cardiologist.
Here's a snapshot of our homecoming waltz down the hallway of the Janeway :)
hellO!my son also has DILV.so far he had 2 od the surgeries and now just waiting for the fontan!how is your son doing now?
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